The Paradox of Pride and Lupus

The Paradox of Pride and Lupus
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If I had to identify with one of the Seven Deadly Sins I would choose pride without hesitation. I always have been stubbornly proud, and it’s hasn’t always been a hindrance. But there are times, especially now, that I need to be able to put it aside. Unfortunately, I can’t.

I don’t know how I became such a proud individual. Maybe it was watching my parents as I grew up, seeing all that they accomplished and how they took it all in stride.

If things got tough, that was fine, but come hell or high water they would finish what they set out to do in the highest standard and show no sign of hardship. It was as if they were superheroes compared to everyone else;  nothing was ever too much, too hard or unable to be accomplished.

I saw this and not only admired it, but embodied. It is who I am.

No matter how hard something is, how impossible something may seem, or how unachieved it is at face value, I’ll find a way not only to do it, but conquer it as you’ve never seen before.

This is a great trait to have when you’re a student, especially at university. It also served me well when I competed in stand-up paddle surfing and while working as a barista.

But it’s not a great trait to have when you’re chronically ill.

With my family I’m an open book; I can’t hide much from them. They read my face like a detailed synopsis. But to everyone else I have this need to appear nonchalant and invincible, even though I know I’m not.

Sometimes my pride means I won’t speak up when maybe I should. It means I’ll keep pushing even though I know there are consequences. It means that for no real reason I’m playing a game of make-believe that revolves around me pretending I’m not sick a majority of the time.

I live in this paradox where I am accepting of myself. I love who I am and I understand and embrace what life has in store for me. Meanwhile, even though I’m open about my lupus, I can’t let myself appear sick.

I don’t understand why I do it, but I know pride plays a huge part.

Society has ingrained in me these ideas that the young aren’t unwell and that only those who appear to be sick actually are. Regardless of the fact that I am living proof that both these ideas are incorrect, I still struggle with coming to terms with my reality.

I’m lucky to have people around me who know and understand what I’m like and where my head is, people who know when to put up a hand to stop me and let me know, enough is enough.

Pride forever will be my greatest ally and worst enemy. It will continue to push me forward to achieve the greatness I know I’m destined for, but it also means I don’t know when it’s my time to stop.

I didn’t know that something so helpful would one day also become so dangerous. But life is about balance and juggling. I walk a tightrope with lupus and when I throw those balls of pride in the air, it’s up to me whether they will throw me off balance, or make my act that much more impressive.

 

Note: Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Lupus News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to lupus.

“Kristi” is a surfer, barista, and university student studying for arts and science degrees in philosophy and mathematical modeling. Living on the picturesque Bellarine Peninsula on the southeast coast of Australia, she’s deeply passionate about salt water and amazing coffee — even though she’s not allowed to drink it. Above all else, she loves traveling the world! Diagnosed with stage IV lupus nephritis at 20, she’s determined to not be defined by her autoimmune condition. Using writing as a medium for self-expression, she hopes to share her life and journey to both raise awareness and support others in similar situations. A big believer in the concept of dialectics, she loves sharing and hearing unorthodox, sometimes controversial, views. She’s quirky by choice, inquisitive by nature, and smiling always!
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“Kristi” is a surfer, barista, and university student studying for arts and science degrees in philosophy and mathematical modeling. Living on the picturesque Bellarine Peninsula on the southeast coast of Australia, she’s deeply passionate about salt water and amazing coffee — even though she’s not allowed to drink it. Above all else, she loves traveling the world! Diagnosed with stage IV lupus nephritis at 20, she’s determined to not be defined by her autoimmune condition. Using writing as a medium for self-expression, she hopes to share her life and journey to both raise awareness and support others in similar situations. A big believer in the concept of dialectics, she loves sharing and hearing unorthodox, sometimes controversial, views. She’s quirky by choice, inquisitive by nature, and smiling always!
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