Updates

March 20, 2019
CAR T-cell Therapy Has Potential to Combat Lupus, Mouse Study Shows

Eliminating B-cells using a recent form of immunotherapy that employs genetically modified T-cells is able to treat lupus in mice in a stable and efficient way, ... Read more
March 18, 2019
Lupus Advocates Converge on Washington to Urge Lawmakers to Help Fight the Disease

Dressed in signature purple attire or accessories, more than 350 lupus advocates from around the U.S. came together on Capitol Hill earlier this month ... Read more
March 18, 2019March 14, 2019
Sometimes, I Just Want to Throw the Fight

I’ve seen many movies in which the characters are paid or forced to lose. A conflict of conscience always arises, even when their actions ... Read more
March 15, 2019March 14, 2019
What Lupus Life Is to Me

Mid-conversation, I’m often asked questions that lead to me revealing information the other person isn’t ready to hear about. It involves an unsettling, controversial ... Read more
March 13, 2019
Study Pinpoints Potential Risk Factors for Peripheral Nervous System Conditions in SLE

High blood pressure and a skin condition characterized by a netlike pattern of reddish-blue skin discoloration — livedo reticularis — may be risk factors ... Read more

News

Lupus Therapeutics, Takeda Launch Phase 1 Trial of TAK-079 for Moderate to Severe SLE
March 11, 2019
The Lupus Research Alliance and its affiliate, Lupus Therapeutics, have partnered with Takeda Pharmaceutical to conduct a Phase ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

47 Minutes of Sanity
March 11, 2019March 7, 2019
I grew up in inner city Chicago, I am a Desert Storm veteran, I ...
News

Physical Fitness Linked with Better Quality of Life in Women with SLE
March 8, 2019
Physical fitness, particularly muscle strength and cardiorespiratory fitness, are associated with better quality of ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

Loving Someone Who Is Forever Evolving
March 8, 2019March 7, 2019
I’m a confessed hopeless romantic. Blame my parents! With 27 years of marriage under ...
News

Discovery of Immune System Messenger May Advance Lupus Treatment
March 6, 2019
Researchers have identified a previously unknown mechanism by which cells that are infected can ...
News

SLICC’s Frailty Index May be Useful to Measure Health Outcomes in SLE Patients, Study Shows
March 4, 2019
A frailty index developed by the Systemic Lupus International Collaborating Clinics (SLICC) could be a powerful and ...

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Nobody Owes Me a Good Life
March 4, 2019March 1, 2019
When lupus decided to change my life, I was loving the one I was ...
Thanks to Lupus, I’m Addicted to Control
March 1, 2019February 28, 2019
I’m an addict. Before you get the wrong idea, I should explain. My addiction ...
Abnormal Gut Bacteria May Participate in Lupus Disease Activity, Study Suggests
February 27, 2019
Immune Regulator miRNA-142 Could Advance Cancer, Autoimmune Disease Research
February 25, 2019
Celebrities with Lupus Help to Bring Awareness
February 25, 2019February 21, 2019
New Model Helps Estimate Risk of Pregnancy Complications in SLE Patients
February 22, 2019

Nephrotic Syndrome Reduces Chances of Kidney Recovery in People with Lupus Nephritis, Study Says
February 20, 2019
People with lupus nephritis who have nephrotic syndrome — loss of protein in urine, ...
Dealing with the Emotional Part of My Lupus Diagnosis
February 18, 2019February 14, 2019
SLE Patients at Higher Risk for Some Blood Cancers, Study Says
February 18, 2019
It’s All or Nothing with Lupus
February 15, 2019February 14, 2019

Low-income SLE Patients at Higher Risk for Bone Fractures, Study Suggests
February 15, 2019
Low-income people with systemic lupus erythematosus (SLE) are at higher risk of getting bone fractures than ...
Study Finds No Causal Link Between Alcohol Intake and SLE Risk
February 13, 2019
Figuring Out the New Me
February 11, 2019February 12, 2019

News

Painful Skin Nodules Are Rare Manifestation of SLE in Children
February 11, 2019February 11, 2019
Panniculitis — a group of conditions that causes painful bumps to appear under the ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

Looking into the Future with Lupus
February 8, 2019February 6, 2019
They say the only things guaranteed in life are death and taxes. I’m lucky ...
News

MUSC Lupus Expert Recognized as American College of Rheumatology Master
February 8, 2019
Lupus researcher Gary S. Gilkeson, MD, a distinguished professor in the Division of Rheumatology ...
News

Stem Cells Have Promise for SLE Treatment Across Ethnicities, Proof-of-concept Study Shows
February 6, 2019
A new proof-of-concept study supports the use of mesenchymal stem cells (MSCs) to treat systemic ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

How I’m Dealing with My Yo-yo Disease Called Lupus
February 4, 2019January 31, 2019
Before I had lupus, anxiety and panic attacks were foreign to me. Since then ...
News

Benlysta Plus Standard Care Helps to Lessen Organ Damage over Long-term, Study Says
February 4, 2019February 4, 2019
Systemic lupus erythematosus (SLE) patients treated Benlysta (belimumab) together with standard of care showed significantly ...
News

Osteopontin Levels Linked to Poor Kidney Function, Higher Disease Activity in SLE Patients, Study Reports
February 1, 2019
In patients with recent-onset systemic lupus erythematosus (SLE), higher levels of a protein called ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

My Mum Is My Greatest Advocate
February 1, 2019January 30, 2019
Ever since I can remember, a little voice has been in the back of ...
News

Antibody Reduces Inflammation, Skin Lesions in SLE Patients, Trial Shows
January 30, 2019January 30, 2019
BIIB059, an antibody that targets a receptor of plasmacytoid dendritic cells, was well-tolerated and ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

The Misconceptions I Had About Remission
January 28, 2019January 25, 2019
When the doctor told me I had lupus, the first question I asked him ...
News

Mutations in Ets1 Gene Tied to Autoimmunity and Lupus in Mice via T-cells, Study Reports
January 28, 2019January 28, 2019
Defects in the Ets1 gene in T-cells, immune system cells with known links to inflammation, caused ...
News

Rituxan Fails to Treat Moderate to Severe SLE without Kidney Involvement, Trial Reanalysis Confirms
January 25, 2019
Rituxan (rituximab) is not effective at treating moderate to severe systemic lupus erythematosus (SLE) patients ...

May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

CAR T-cell Therapy Has Potential to Combat Lupus, Mouse Study Shows

Lupus Advocates Converge on Washington to Urge Lawmakers to Help Fight the Disease

Sometimes, I Just Want to Throw the Fight

What Lupus Life Is to Me

Study Pinpoints Potential Risk Factors for Peripheral Nervous System Conditions in SLE

Lupus Therapeutics, Takeda Launch Phase 1 Trial of TAK-079 for Moderate to Severe SLE

Physical Fitness Linked with Better Quality of Life in Women with SLE

Loving Someone Who Is Forever Evolving

Discovery of Immune System Messenger May Advance Lupus Treatment

SLICC’s Frailty Index May be Useful to Measure Health Outcomes in SLE Patients, Study Shows

Subscribe to our mailing list

Nobody Owes Me a Good Life

Thanks to Lupus, I’m Addicted to Control

Abnormal Gut Bacteria May Participate in Lupus Disease Activity, Study Suggests

Immune Regulator miRNA-142 Could Advance Cancer, Autoimmune Disease Research

Celebrities with Lupus Help to Bring Awareness

New Model Helps Estimate Risk of Pregnancy Complications in SLE Patients

Nephrotic Syndrome Reduces Chances of Kidney Recovery in People with Lupus Nephritis, Study Says

SLE Patients at Higher Risk for Some Blood Cancers, Study Says

It’s All or Nothing with Lupus

Low-income SLE Patients at Higher Risk for Bone Fractures, Study Suggests

Study Finds No Causal Link Between Alcohol Intake and SLE Risk

Figuring Out the New Me

Painful Skin Nodules Are Rare Manifestation of SLE in Children

Looking into the Future with Lupus

MUSC Lupus Expert Recognized as American College of Rheumatology Master

Stem Cells Have Promise for SLE Treatment Across Ethnicities, Proof-of-concept Study Shows

How I’m Dealing with My Yo-yo Disease Called Lupus

Benlysta Plus Standard Care Helps to Lessen Organ Damage over Long-term, Study Says

Osteopontin Levels Linked to Poor Kidney Function, Higher Disease Activity in SLE Patients, Study Reports

My Mum Is My Greatest Advocate

Antibody Reduces Inflammation, Skin Lesions in SLE Patients, Trial Shows

The Misconceptions I Had About Remission

Mutations in Ets1 Gene Tied to Autoimmunity and Lupus in Mice via T-cells, Study Reports

Rituxan Fails to Treat Moderate to Severe SLE without Kidney Involvement, Trial Reanalysis Confirms

With Lupus, a Power Nap Helps You to Maximize Your Day

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