Updates

July 27, 2020July 23, 2020
Your Opinions and Advice Are Now Considered Garbage

I research every medication I am prescribed. I have doctors explain my test results as if I am 6 years old. I ask questions ... Read more
July 17, 2020July 15, 2020
How Lupus Was the Catalyst to Authenticity in My Life

At one point or another, everyone realizes that pleasing the masses is impossible. With that realization comes freedom. The freedom to finally live the ... Read more
July 13, 2020July 9, 2020
These Feelings Can’t Be Real

There are days when my life feels like a Milli Vanilli song; it’s being faked, but it’s known for the part that is fake! ... Read more
July 10, 2020July 8, 2020
How I’m Reclaiming the Anniversary of My Diagnosis

As of May 22, 2020, I have lived with my lupus diagnosis for four years. I have commemorated the past three anniversaries on ... Read more
June 29, 2020June 25, 2020
Remembering the Time I Thought I Could Find Some Normalcy

I was awake for half the night. This is not unusual, but often I am coming up with topics to write about in this ... Read more

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May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Your Opinions and Advice Are Now Considered Garbage

How Lupus Was the Catalyst to Authenticity in My Life

These Feelings Can’t Be Real

How I’m Reclaiming the Anniversary of My Diagnosis

Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

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I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

With Lupus, a Power Nap Helps You to Maximize Your Day

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Your Opinions and Advice Are Now Considered Garbage

How Lupus Was the Catalyst to Authenticity in My Life

These Feelings Can’t Be Real

How I’m Reclaiming the Anniversary of My Diagnosis

Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

Subscribe to our mailing list

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

As Social Distancing Professionals, We Have a Head Start

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Friends and Strangers Kept Me Sane While I Was Hospitalized

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

Pin It on Pinterest