Updates

May 22, 2020May 20, 2020
Taking Advantage of Living in a Time Like No Other

We are living in a unique time, and I am not referring only to the COVID-19 pandemic. How many times in your life have ... Read more
May 22, 2020May 22, 2020
Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

Rheumatologists, researchers, and patients have joined forces on a global scale to better understand how COVID-19 affects people with rheumatic diseases, including those with ... Read more
May 18, 2020May 14, 2020
I’m Learning New Skills as I Adapt to Change

I was hospitalized the first month of this year, and I hope it’ll be the only time this happens in 2020. After the hospital, ... Read more
May 15, 2020May 15, 2020
Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus significantly affects mobility and the ability to conduct everyday activities, according to a global World Lupus Federation survey. Results of the questionnaire, which ... Read more
May 8, 2020May 8, 2020
Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Despite the COVID-19 outbreak, ample online ways exist to mark Lupus Awareness Month, observed each May to call attention to lupus and raise funds ... Read more

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May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

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Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

Patient-reported Lupus Flares Linked to Disease Severity, Survey Finds

I Am Slowly Shifting My Mindset

Black Women with SLE Find Self-Management Program Improves Health

I’ve Decided to Face Forward with a New Outlook

Better Counseling of Lupus Patients Likely When Greater Range Given to CLE Scales, Study Says

My Spirit Is Broken on My Road to Recovery

Enzo’s SK1‑I Eases SLE-associated Immune and Inflammatory Responses in Mouse Model, Study Shows

With Lupus, a Power Nap Helps You to Maximize Your Day

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Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

Subscribe to our mailing list

Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

As Social Distancing Professionals, We Have a Head Start

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Friends and Strangers Kept Me Sane While I Was Hospitalized

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

Patient-reported Lupus Flares Linked to Disease Severity, Survey Finds

I Am Slowly Shifting My Mindset

Lower Income Linked to Increased Risk of Lupus Nephritis, New Study Finds

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

Black Women with SLE Find Self-Management Program Improves Health

I’ve Decided to Face Forward with a New Outlook

Better Counseling of Lupus Patients Likely When Greater Range Given to CLE Scales, Study Says

My Spirit Is Broken on My Road to Recovery

Enzo’s SK1‑I Eases SLE-associated Immune and Inflammatory Responses in Mouse Model, Study Shows

Pin It on Pinterest