Updates

June 29, 2020June 25, 2020
Remembering the Time I Thought I Could Find Some Normalcy

I was awake for half the night. This is not unusual, but often I am coming up with topics to write about in this ... Read more
June 19, 2020June 17, 2020
Why I Don’t Want to Live Forever

I have thought about death and mortality more than the average 20-something. In fact, I love nothing more than debating the philosophy around it. ... Read more
June 15, 2020June 11, 2020
I Am Battling Lupus but I Am Not Fragile

I am slight in build. I am a woman who is bald. I am battling lupus. I am not fragile. If you were to ... Read more
June 8, 2020June 4, 2020
Remaining Hopeful Is Hard, but I’m Trying

I often remind myself that worrying isn’t helpful, especially because stress is a lupus trigger. In my past life as a well person, I ... Read more
May 29, 2020May 29, 2020
Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Treatment with Benlysta (belimumab) induces meaningful and long-lasting reductions in systemic lupus erythematosus (SLE) disease activity, helping a significant proportion of patients achieve durable ... Read more

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May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

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A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

Patient-reported Lupus Flares Linked to Disease Severity, Survey Finds

I Am Slowly Shifting My Mindset

With Lupus, a Power Nap Helps You to Maximize Your Day

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Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Subscribe to our mailing list

A Different Kind of Connection

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

Coping and Thriving During COVID-19 Isolation

RC18 Receives FDA’s Fast Track Designation for Treating SLE

Remaining Optimistic During Times of Uncertainty

RemeGen Raises $100M to Advance Potential Lupus Treatment, RC18

Phase 3 Results Suggest Low-Dose Prednisone Lowers Flare Risk in SLE Patients in Remission

Energy Is a Casualty of Coronavirus Quarantine

The Burden of Feeling Like a Burden

Voclosporin Helps Protect Kidneys in Lupus Nephritis, Phase 3 Trial Shows

LFA Working To Ensure Supply of Lupus Medications for Patients Amid COVID-19

As Social Distancing Professionals, We Have a Head Start

Who Cares About Matching Body Parts Anyway?

GluN2A Protein Subunit in Nerve Cells May Be Treatment Target in SLE, Mouse Study Suggests

Voclosporin for Lupus Nephritis Under ‘Rolling’ Review by FDA

Therapy Shows Potential to Block, Not Deplete, B-cells in Phase 1b Trial

Friends and Strangers Kept Me Sane While I Was Hospitalized

Aurinia, NKF Partner for National Kidney Month, Focus on Lupus Nephritis

The Smell of Hand Sanitizer Provokes Traumatic Hospital Memories

Acthar Gel Eases SLE Exacerbations and Symptoms, Study Reports

Patient-reported Lupus Flares Linked to Disease Severity, Survey Finds

I Am Slowly Shifting My Mindset

Lower Income Linked to Increased Risk of Lupus Nephritis, New Study Finds

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

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