Updates

February 26, 2021February 24, 2021
Ending an Era: Saying Goodbye to ‘The Girl Who Cried Wolf’

I’ve been procrastinating writing this column for a couple of days now. Partly because my heart doesn’t want to, and partly because I don’t know ... Read more
February 26, 2021February 24, 2021
To My Lupus Community: I’m So Glad We Had This Time Together

As a kid, I was a big Carol Burnett fan. At the end of her variety show, she would sing a song called “I’m So ... Read more
February 19, 2021February 17, 2021
We May Be Rare, but We Are Not Alone on Rare Disease Day

As we approach Rare Disease Day on Feb. 28, I reflect on the pros and cons of the word “rare.” Apart from my chronic illness, ... Read more
February 15, 2021February 11, 2021
Despite Everything I’ve Lost to Lupus, I’m Still Smiling

It’s funny what we take for granted — including the sound of our voices. For a few years, I took voice lessons and participated in ... Read more
February 1, 2021January 28, 2021
2020 Was a Crazy Year, but It Brought Me Many Blessings

Historic and challenging events happened last year. There was never a dull moment, and if your coping skills were rusty, 2020 made you get out ... Read more

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May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. – ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Ending an Era: Saying Goodbye to ‘The Girl Who Cried Wolf’

We May Be Rare, but We Are Not Alone on Rare Disease Day

Despite Everything I’ve Lost to Lupus, I’m Still Smiling

2020 Was a Crazy Year, but It Brought Me Many Blessings

The Problem With Forced Positivity

A New Perspective on Living the Dream

Battling Insecurities and a Change in My Self-esteem

The Difficulty of Explaining Lupus Fatigue to Others

Wrapping My Head Around the Number of Meds I Take

Lupus Makes Me Crave Control

Subscribe to our mailing list

I Am Developing a Phobia of Commitments

The Glory of Extraordinary Doctors

Figuring Out Where We All Fit In

Because of Lupus, I Learned the Meaning of Love

Am I Experiencing Karma From Past Judgmental Thoughts?

The Journey to Happiness After My Lupus Diagnosis

Responding to Religious Comments When You’re Not Religious

I’m Growing Tired of Smiling My Way Through Compromise

Sometimes I Feel Like an Imposter in the Lupus Community

The Mantra ‘I Have Lupus but Lupus Doesn’t Have Me’ Is Nonsense

Revisiting the Plans I Had Before the World Went Mad

Your Opinions and Advice Are Now Considered Garbage

How Lupus Was the Catalyst to Authenticity in My Life

These Feelings Can’t Be Real

How I’m Reclaiming the Anniversary of My Diagnosis

Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

With Lupus, a Power Nap Helps You to Maximize Your Day

Ending an Era: Saying Goodbye to ‘The Girl Who Cried Wolf’

To My Lupus Community: I’m So Glad We Had This Time Together

We May Be Rare, but We Are Not Alone on Rare Disease Day

Despite Everything I’ve Lost to Lupus, I’m Still Smiling

2020 Was a Crazy Year, but It Brought Me Many Blessings

The Problem With Forced Positivity

A New Perspective on Living the Dream

Battling Insecurities and a Change in My Self-esteem

The Difficulty of Explaining Lupus Fatigue to Others

Wrapping My Head Around the Number of Meds I Take

Lupus Makes Me Crave Control

Subscribe to our mailing list

I Am Developing a Phobia of Commitments

The Glory of Extraordinary Doctors

Figuring Out Where We All Fit In

Because of Lupus, I Learned the Meaning of Love

Am I Experiencing Karma From Past Judgmental Thoughts?

The Journey to Happiness After My Lupus Diagnosis

Responding to Religious Comments When You’re Not Religious

I’m Growing Tired of Smiling My Way Through Compromise

Sometimes I Feel Like an Imposter in the Lupus Community

The Mantra ‘I Have Lupus but Lupus Doesn’t Have Me’ Is Nonsense

Revisiting the Plans I Had Before the World Went Mad

Sharing My Diagnosis on Social Media Changed My Life

Your Opinions and Advice Are Now Considered Garbage

How Lupus Was the Catalyst to Authenticity in My Life

These Feelings Can’t Be Real

How I’m Reclaiming the Anniversary of My Diagnosis

Remembering the Time I Thought I Could Find Some Normalcy

Why I Don’t Want to Live Forever

I Am Battling Lupus but I Am Not Fragile

Remaining Hopeful Is Hard, but I’m Trying

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

Taking Advantage of Living in a Time Like No Other

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

I’m Learning New Skills as I Adapt to Change

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality