Updates

November 12, 2018November 12, 2018
Stem Cell Treatment Seen to Benefit Lupus Patients in Phase 1 Trial, New Study Opening

A single infusion of mesenchymal stem cells (MSCs) — those that make cells of the cartilage, bone, and fat — decreased the number of auto-reactive immune ... Read more
November 9, 2018
Progentec Gains Additional Funding for Lupus Detection and Management Platforms

Completion of a second round of funding could help bring closer to market Progentec Diagnostics‘ new tool for predicting lupus flares and a biomarker-based ... Read more
November 7, 2018November 9, 2018
Researchers Develop Bioelectronic Device to Minimize Pain and Fatigue in SLE Patients

Researchers from the Feinstein Institute for Medical Research have developed a bioelectronic device that is effective at reducing pain and fatigue in people with systemic ... Read more
November 5, 2018November 2, 2018
Am I Optimistic or Am I in Denial?

I am on a journey. I’m chasing remission from lupus by using a plant-based lifestyle. I’m keeping a record of how I feel, my ... Read more
November 5, 2018November 5, 2018
Lupus Patients Can Benefit from Counseling Others, Study Shows

Systemic lupus erythematosus (SLE) patients who volunteer for phone counseling with other lupus patients also benefit significantly from the experience, reporting reduced isolation and ... Read more

Columns, The Girl Who Cried Wolf - A Column by Kristi Page

3 Things that Changed My Life with Lupus Fatigue, Part 2
November 2, 2018November 1, 2018
Second in a series. Read part one. IV iron infusions Every few months, I ...
News

Lupus Patients with Highly Active Disease Responded Well to Atacicept in Short- and Long-term, Phase 2 Trial Shows
November 2, 2018November 12, 2018
Systemic lupus erythematosus (SLE) patients with highly active disease responded well to treatment with ...
News

Leflunomide, an Immunosuppressant, Seen as Effective Maintenance Therapy for Lupus Nephritis in Clinical Trial
October 31, 2018October 31, 2018
The immunosuppressant leflunomide appears to be as effective as azathioprine in maintaining remission and delaying ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

It’s Important to Advocate for Yourself in Healthcare Settings
October 29, 2018October 24, 2018
For many of you who have followed my journey, you know that I chose ...
News

Naturally Produced Fat Molecules Could Help Treat Lupus, Other Inflammatory Diseases
October 29, 2018October 29, 2018
Nitro-fatty acids — a type of fatty molecule naturally produced in the body — ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

3 Things that Changed My Life with Lupus Fatigue, Part 1
October 26, 2018October 25, 2018
First in a series. In the past two years, I’ve written nearly 150 columns ...

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Ustekinumab Provides Sustained Decrease of SLE Disease Activity, Phase 2 Trial Shows
October 26, 2018
One year of treatment with ustekinumab led to sustained reductions in disease activity in systemic ...
Corticosteroids and Hydroxychloriquine Top Medications Used by SLE, Lupus Nephritis Patients, Study Reports
October 24, 2018October 24, 2018
Corticosteroids and hydroxychloroquine are the most common medications used by patients with systemic lupus ...
Immugenyx Collaborates with Janssen to Create Humanized Mouse Model of SLE
October 22, 2018October 22, 2018
DN2 B-Cells at Heart of Lupus Disease Activity, Study Suggests
October 19, 2018October 19, 2018
Transplanted Regulatory T-cells May Reduce Inflammation in Lupus Skin Lesions
October 17, 2018
The Politics of Food
October 15, 2018October 12, 2018

Organs May Actively Fight Autoimmune Diseases, SLE Study Suggests
October 15, 2018
Organs affected by autoimmune disease might be able to suppress T-cell function in a ...
Xencor’s Candidate Antibody Therapy for Lupus Shows Positive Results in Phase 2 Study
October 12, 2018
Childhood SLE Has Major Impact in Adulthood, Dutch Study Shows
October 10, 2018October 10, 2018
Aurinia Completes Enrollment for Phase 3 Trial Testing Voclosporin to Treat Lupus Nephritis
October 8, 2018

Grieving the Loss of Warriors
October 8, 2018October 5, 2018
Each time I learn of a warrior’s death, I get depressed. It doesn’t matter ...
Black, Hispanic SLE Patients in US at Higher Stroke Risk Than Whites, Study Reports
October 5, 2018
Virtual Friendships and Real Grief
October 5, 2018October 4, 2018

Columns, Keep It Moving - a Column by Shanelle Gabriel

Answering Questions and Activating Advocacy
October 4, 2018October 2, 2018
A guy I was seeing took it upon himself to Google me. (Yes, I’m ...
News

Diagnostic Tests for SLE Should Include New Variants Found in African Patients, Study Suggests
October 3, 2018October 3, 2018
Black Africans often have distinct variants of systemic lupus erythematosus compared to white patients, but ...
News

Ustekinumab as Add-on Therapy Was Seen to Benefit SLE Patients in Phase 2 Trial
October 1, 2018
Ustekinumab as an add-on to standard of care was seen to significantly increase the ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

Think Before You Hit the Send Button
October 1, 2018September 27, 2018
Sometimes I think people forget that on the other side of the keyboard are ...
News

High SLE Disease Activity Over Time Warrants New Treatments, Study Asserts
September 28, 2018
The activity of systemic lupus erythematosus (SLE) is persistently high in a large proportion of ...
News

Mercy College Researchers Get $600K Grant to Study Care, Research Gaps Among Young Lupus Patients
September 26, 2018September 26, 2018
To help address disparities in the research and care of adolescents with lupus, the ...
News

Soliris Seen as Effective at Treating Lupus Nephritis Patients with TMA, Rare Disease of Small Vessels
September 24, 2018
Patients with lupus nephritis — a lupus-associated type of kidney inflammation — can sometimes develop ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

A New Definition of Happiness
September 21, 2018September 19, 2018
At 18, my lupus diagnosis was still two years off, and happiness was a ...
News

Pneumonia in SLE Associated with Adverse Prognosis, Study Reports
September 21, 2018
Patients with systemic lupus erythematosus (SLE) who develop pneumonia have a high risk of ...
Columns, Keep It Moving - a Column by Shanelle Gabriel

Saying ‘Yes’ or ‘No’ to Prescribed Medications
September 20, 2018September 18, 2018
Some of you will remember the 1980s public service commercial where the man holds ...
News

Depression May Increase Risk of Developing Lupus, Long-term Study Shows
September 19, 2018September 19, 2018
Women with a history of depression have more than twice the risk of developing ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

Losing It All, but Fighting Back
September 17, 2018September 14, 2018
I opened my eyes this morning and knew it would be a great day ...

May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Stem Cell Treatment Seen to Benefit Lupus Patients in Phase 1 Trial, New Study Opening

Progentec Gains Additional Funding for Lupus Detection and Management Platforms

Researchers Develop Bioelectronic Device to Minimize Pain and Fatigue in SLE Patients

Am I Optimistic or Am I in Denial?

Lupus Patients Can Benefit from Counseling Others, Study Shows

3 Things that Changed My Life with Lupus Fatigue, Part 2

Lupus Patients with Highly Active Disease Responded Well to Atacicept in Short- and Long-term, Phase 2 Trial Shows

Leflunomide, an Immunosuppressant, Seen as Effective Maintenance Therapy for Lupus Nephritis in Clinical Trial

It’s Important to Advocate for Yourself in Healthcare Settings

Naturally Produced Fat Molecules Could Help Treat Lupus, Other Inflammatory Diseases

3 Things that Changed My Life with Lupus Fatigue, Part 1

Subscribe to our mailing list

Ustekinumab Provides Sustained Decrease of SLE Disease Activity, Phase 2 Trial Shows

Corticosteroids and Hydroxychloriquine Top Medications Used by SLE, Lupus Nephritis Patients, Study Reports

Immugenyx Collaborates with Janssen to Create Humanized Mouse Model of SLE

DN2 B-Cells at Heart of Lupus Disease Activity, Study Suggests

Transplanted Regulatory T-cells May Reduce Inflammation in Lupus Skin Lesions

The Politics of Food

Organs May Actively Fight Autoimmune Diseases, SLE Study Suggests

Xencor’s Candidate Antibody Therapy for Lupus Shows Positive Results in Phase 2 Study

Childhood SLE Has Major Impact in Adulthood, Dutch Study Shows

Aurinia Completes Enrollment for Phase 3 Trial Testing Voclosporin to Treat Lupus Nephritis

Grieving the Loss of Warriors

Black, Hispanic SLE Patients in US at Higher Stroke Risk Than Whites, Study Reports

Answering Questions and Activating Advocacy

Diagnostic Tests for SLE Should Include New Variants Found in African Patients, Study Suggests

Ustekinumab as Add-on Therapy Was Seen to Benefit SLE Patients in Phase 2 Trial

Think Before You Hit the Send Button

High SLE Disease Activity Over Time Warrants New Treatments, Study Asserts

Mercy College Researchers Get $600K Grant to Study Care, Research Gaps Among Young Lupus Patients

Soliris Seen as Effective at Treating Lupus Nephritis Patients with TMA, Rare Disease of Small Vessels

A New Definition of Happiness

Pneumonia in SLE Associated with Adverse Prognosis, Study Reports

Saying ‘Yes’ or ‘No’ to Prescribed Medications

Depression May Increase Risk of Developing Lupus, Long-term Study Shows

Losing It All, but Fighting Back

With Lupus, a Power Nap Helps You to Maximize Your Day

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