Updates

June 19, 2019
Ustekinumab Reduces Severe Flares in Patients with Active SLE, Trial Shows

Treatment with ustekinumab leads to significant reductions in severe flares in systemic lupus erythematosus (SLE) patients with active disease, 1-year data from a ... Read more
June 17, 2019
Gazyva Combo Helps Lupus Nephritis Patients Achieve Response, Trial Data Show

Gazyva (obinutuzumab) in combination with standard-of-care agents significantly increases the percentage of patients with proliferative lupus nephritis achieving complete or partial renal response, top-line ... Read more
June 17, 2019June 13, 2019
Being Positive Isn’t Always Easy

Many of us grew up with nicknames. Later, working in the real estate industry, it was common for people to adopt nicknames that helped ... Read more
June 14, 2019June 12, 2019
I Never Wanted to Be an Inspiration — I’d Rather Be Free of Lupus

“You’re an inspiration to many.” I get it all the time. Do you want to know a secret? I never wanted to be an ... Read more
June 14, 2019
KZR-616 Shows Early Promise in Treatment of Active SLE

KZR-616, a selective immunoproteasome inhibitor, is safe, well-tolerated, and effectively reduces disease activity in patients with active systemic lupus erythematosus (SLE), preliminary Phase 1b ... Read more

News

Community the Key in Fight Against Lupus: A Wellness Expert’s View
June 14, 2019June 14, 2019
These days, more than ever, we need community. As a culture, we are experiencing ...
Columns, Learning to Live with Lupus - a Column by Darla Gay

Just Like Oprah, I Love Bread!
June 13, 2019June 11, 2019
I cannot deny it: I love bread. Toast with peanut butter has been my ...
News

LFA Rings Nasdaq Bell, Calling Attention to Lupus and Importance of Early Diagnosis
June 12, 2019
Only a select few are invited to ring the Nasdaq stock exchange bell. The Lupus Foundation ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

Lupus Is a Bully, and I Will Treat It as Such
June 10, 2019June 6, 2019
Recently, I was having a discussion about lupus. Because I’m a self-proclaimed joy junkie, ...
News

Rare and Once-ignored Mutations May Contribute to Lupus, Study Finds
June 7, 2019
Certain rare gene mutations, previously ignored, appear to contribute substantially to the development of ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

I’m Living My Best Life Yet Despite Lupus
June 7, 2019June 5, 2019
Whenever I write about lupus, I refer to it as a separate entity. In ...

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Will an Anti-inflammatory Diet Help My Symptoms?
June 6, 2019June 4, 2019
What is an anti-inflammatory diet? An anti-inflammatory diet is designed to reduce the inflammation ...
CellCept’s Impact on Immune Pathway May Explain Its Effectiveness, Study Says
June 5, 2019
In studying how mycophenolate mofetil treatment affects immune cells and blood markers in people with systemic ...
Exagen’s Patented Biomarker PC4d May Help Predict Risk of Blood Clots in SLE, Study Shows
June 3, 2019
Saying Goodbye to the Past Life and Learning New Hobbies that Heal
June 3, 2019May 23, 2019
Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows
May 31, 2019May 31, 2019
Being Both the Caregiver and Care Receiver with Chronic Illness
May 31, 2019May 31, 2019

Just Breathe: Trying to Calm the Chaos in My Brain
May 30, 2019May 28, 2019
I used to be a neat, organized person. Being diagnosed with lupus, however, turned ...
Michigan Medicine Team Receives $10.2M to Seek Potential Therapies for Lupus, Other Autoimmune Diseases
May 29, 2019May 29, 2019
Doctors or Insurance: Who Decides the Best Lupus Treatment for Me?
May 23, 2019May 21, 2019
Aurinia Launches Lupus Awareness Campaigns with Support Initiatives
May 20, 2019

I Constantly Live in Fear of a New Lupus Flare
May 17, 2019May 16, 2019
Living with lupus makes me feel a little precarious. I can’t fully enjoy the ...
How I Found Gratitude in Spite of Multiple Illnesses
May 16, 2019May 14, 2019
Timed to World Lupus Day, Report Highlights Need to Raise Awareness and Enhance Patient Care
May 15, 2019

News

Survey Results Call for More Awareness About Lupus and Its Symptoms
May 13, 2019
A survey found that 63 percent of American respondents either had never heard of ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

Replacing the Rug, One Piece at a Time
May 13, 2019May 10, 2019
After three years, some things are finally leveling out for me. When I was ...
News

LFA Experts Offer Insights into Critical Needs in Childhood Lupus at CARRA Annual Meeting
May 10, 2019
At the 2019 annual meeting of the Childhood Arthritis and Rheumatology Research Alliance (CARRA), ...
Columns, Learning to Live with Lupus - a Column by Darla Gay

Finding Ways to Make Sleep Come More Easily
May 9, 2019May 7, 2019
My doctor sent me for a sleep study after my husband told him how ...
News

Mallinckrodt Completes Enrollment in Phase 4 Trial Testing Acthar Gel in SLE Patients
May 8, 2019
Mallinckrodt Pharmaceuticals has completed enrollment for its Phase 4 clinical trial evaluating the safety and effectiveness ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

Being Imperfect Does Not Make Me Defective — or Undatable
May 6, 2019May 2, 2019
It doesn’t matter who you are, you have problems. We all have problems. I ...
Columns, The Girl Who Cried Wolf - A Column by Kristi Page

When ‘Good Enough’ Is Enough: Don’t Stress About Perfection
May 3, 2019May 1, 2019
Being an adult isn’t anything like I imagined it. I also never imagined being ...
News

FDA Approves GSK’s Benlysta for Treatment of Children with SLE
May 2, 2019
The U.S. Food and Drug Administration (FDA) has approved, under priority review, the use ...
Columns, Learning to Live with Lupus - a Column by Darla Gay

On the To-do List: How to Cope When You Have Brain Fog
May 2, 2019April 30, 2019
Lupus ‘brain fog’ is aptly named When I am tired or under a lot ...
News

Power Naps, Oils and Other Ways to Manage Life with Lupus: A Wellness Expert’s View
May 2, 2019May 2, 2019
When it comes to autoimmune disease, diet and lifestyle play an equal role in ...
News

Adults with Lupus at Risk for Severe Herpes Simplex Virus Infection, Study Finds
April 29, 2019
Systemic lupus erythematosus (SLE) patients are a higher risk for severe herpes simplex virus ...
Columns, Hurricane in Heels -- a Column by Kellie McRae

What I Must Do When I’m Angry
April 29, 2019April 25, 2019
Lupus sucks. Let’s just acknowledge that from the onset. I was living an awesome life, ...

May 17, 2018May 15, 2018

With Lupus, a Power Nap Helps You to Maximize Your Day

Columns, Keep It Moving - a Column by Shanelle Gabriel

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. ... Read more

This is a short description about myself and what this site is about. I hope you enjoy being here!

Updates

Ustekinumab Reduces Severe Flares in Patients with Active SLE, Trial Shows

Gazyva Combo Helps Lupus Nephritis Patients Achieve Response, Trial Data Show

Being Positive Isn’t Always Easy

I Never Wanted to Be an Inspiration — I’d Rather Be Free of Lupus

KZR-616 Shows Early Promise in Treatment of Active SLE

Community the Key in Fight Against Lupus: A Wellness Expert’s View

Just Like Oprah, I Love Bread!

LFA Rings Nasdaq Bell, Calling Attention to Lupus and Importance of Early Diagnosis

Lupus Is a Bully, and I Will Treat It as Such

Rare and Once-ignored Mutations May Contribute to Lupus, Study Finds

I’m Living My Best Life Yet Despite Lupus

Subscribe to our mailing list

Will an Anti-inflammatory Diet Help My Symptoms?

CellCept’s Impact on Immune Pathway May Explain Its Effectiveness, Study Says

Exagen’s Patented Biomarker PC4d May Help Predict Risk of Blood Clots in SLE, Study Shows

Saying Goodbye to the Past Life and Learning New Hobbies that Heal

Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows

Being Both the Caregiver and Care Receiver with Chronic Illness

Just Breathe: Trying to Calm the Chaos in My Brain

Michigan Medicine Team Receives $10.2M to Seek Potential Therapies for Lupus, Other Autoimmune Diseases

Doctors or Insurance: Who Decides the Best Lupus Treatment for Me?

Aurinia Launches Lupus Awareness Campaigns with Support Initiatives

I Constantly Live in Fear of a New Lupus Flare

How I Found Gratitude in Spite of Multiple Illnesses

Timed to World Lupus Day, Report Highlights Need to Raise Awareness and Enhance Patient Care

Survey Results Call for More Awareness About Lupus and Its Symptoms

Replacing the Rug, One Piece at a Time

LFA Experts Offer Insights into Critical Needs in Childhood Lupus at CARRA Annual Meeting

Finding Ways to Make Sleep Come More Easily

Mallinckrodt Completes Enrollment in Phase 4 Trial Testing Acthar Gel in SLE Patients

Being Imperfect Does Not Make Me Defective — or Undatable

When ‘Good Enough’ Is Enough: Don’t Stress About Perfection

FDA Approves GSK’s Benlysta for Treatment of Children with SLE

On the To-do List: How to Cope When You Have Brain Fog

Power Naps, Oils and Other Ways to Manage Life with Lupus: A Wellness Expert’s View

Adults with Lupus at Risk for Severe Herpes Simplex Virus Infection, Study Finds

With Lupus, a Power Nap Helps You to Maximize Your Day

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