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May 22, 2020 by Ines Martins, PhD

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

Rheumatologists, researchers, and patients have joined forces on a global scale to better understand how COVID-19 affects people with rheumatic diseases, including those with systemic lupus erythematosus (SLE). The COVID-19 Global Rheumatology Alliance registry, which had more than 100 cases within one week of launching, “represents…

April 27, 2017 by Ines Martins, PhD

Lupus Patients Can Use New Registry to Provide Information That Helps Researchers

The Lupus Foundation of America has started an online platform where patients can provide information about their lives that researchers can use. It will help patients as well as researchers understand lupus better, the foundation said. The Research.forME Lupus Registry will collect patients’ observations about caregivers’ experiences as well. The information will…

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