5 Tips for Lupus Caregivers

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by Wendy Henderson |

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Looking after a person with lupus is hard, but manageable, work. You’ll need to be organized and prepared to make some life changes, however. Here are five tips for lupus caregivers, provided by the Lupus Foundation of America.

Caring for someone with lupus

Lupus Research Alliance

People who develop serious health problems due to lupus may be unable to look after themselves, and will need a caregiver to assist them. (As well as looking after a lupus patient’s physical needs, you may also find that you need to give emotional support to those who may be suffering from depression.)

If you’re a caregiver for a lupus patient, make sure you’re up-to-date with all the latest information about the disease, including symptoms and treatments.

Depression can be a result of lupus. But do you know the science behind it?

Taking care of yourself


As a caregiver (for a lupus patient or any other patient) it is vital that you also look after your own physical and mental health. Eating well, getting enough sleep, and exercising are all vital to staying healthy. If you fall ill, you won’t be able to do your job as a caregiver very well.

Find support by joining groups, either in person or online, where you can meet with other caregivers and share information and experiences. Don’t be afraid to ask friends and family members for help and take time out for yourself.

Learn about nine tips to live well with lupus here.

Managing legal, financial, and health insurance issues


You may be required to manage the legal side of a lupus patient’s life, including financial and insurance details. Make sure you have copies of all the relevant paperwork you may need. Ensure you have the legal authority to make decisions on behalf of the patient, should the need arise.

A professional financial planner may be useful initially, until you are sure that you have everything in place.

Read about ten frequently asked questions about lupus here.

Preparing for unexpected events


Life is full of surprises, and looking after a lupus patient is no exception. Familiarize yourself with what you would need to do in a medical emergency, and keep all legal and medical paperwork organized so you can access papers quickly when you need them.

You will need to have contingency plans in place in case you suddenly become ill and are not available for caregiving duties.

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Caring for children and teens


Learning what may trigger lupus flares in children is key, and ensuring your child has a healthy diet, exercise, and enough sleep is paramount. You will need to look out for any outward changes that may occur over time, and ensure your child regularly explains any symptoms they may be experiencing to you.

Explain to teachers (and other adults who may be responsible for your child) about lupus, the particular symptoms your child has, and how the disease may affect schooling.

Discover nine symptoms of lupus in children here.

Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.