June 8, 2020June 4, 2020
Remaining Hopeful Is Hard, but I’m Trying
Columns, Hurricane in Heels -- a Column by Kellie McRae
I often remind myself that worrying isn’t helpful, especially because stress is a lupus trigger. In my past life ... Read more
May 29, 2020May 29, 2020
Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows
News
Treatment with Benlysta (belimumab) induces meaningful and long-lasting reductions in systemic lupus erythematosus (SLE) disease activity, helping a significant ... Read more
May 22, 2020May 20, 2020
Taking Advantage of Living in a Time Like No Other
Columns, The Girl Who Cried Wolf - A Column by Kristi Page
We are living in a unique time, and I am not referring only to the COVID-19 pandemic. How many ... Read more
May 22, 2020May 22, 2020
Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases
News
Rheumatologists, researchers, and patients have joined forces on a global scale to better understand how COVID-19 affects people with ... Read more
May 18, 2020May 14, 2020
I’m Learning New Skills as I Adapt to Change
Columns, Hurricane in Heels -- a Column by Kellie McRae
I was hospitalized the first month of this year, and I hope it’ll be the only time this happens ... Read more
May 15, 2020May 15, 2020
Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality
News
Lupus significantly affects mobility and the ability to conduct everyday activities, according to a global World Lupus Federation survey. ... Read more
May 8, 2020May 8, 2020
Lupus Awareness Month Marked by Local, Online and Worldwide Activities
News
Despite the COVID-19 outbreak, ample online ways exist to mark Lupus Awareness Month, observed each May to call attention ... Read more
April 29, 2020April 29, 2020
Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak
Announcements
FFF Enterprises and BioNews announced today that both rare and orphan disease advocates are joining forces to provide patients ... Read more
April 27, 2020April 22, 2020
A Different Kind of Connection
Columns, Hurricane in Heels -- a Column by Kellie McRae
The lupus life can feel seriously lonely. Supporters surround me, but I know they can’t understand the things I ... Read more
April 27, 2020April 28, 2020
Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say
News, syndicated
While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of ... Read more
April 24, 2020April 24, 2020
Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients
News
Lupus Therapeutics, an affiliate of the Lupus Research Alliance (LRA), announced that it is working to design and run a clinical ... Read more
April 17, 2020April 14, 2020
Coping and Thriving During COVID-19 Isolation
Columns, The Girl Who Cried Wolf - A Column by Kristi Page
My last column focused on fear and other potential effects of being in isolation. As Australia continues to lock ... Read more

June 8, 2020June 4, 2020

Remaining Hopeful Is Hard, but I’m Trying

Columns, Hurricane in Heels -- a Column by Kellie McRae

I often remind myself that worrying isn’t helpful, especially because stress is a lupus trigger. In my past life as a well person, I always thought I handled stress ... Read more

May 29, 2020May 29, 2020

Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows

News

Treatment with Benlysta (belimumab) induces meaningful and long-lasting reductions in systemic lupus erythematosus (SLE) disease activity, helping a significant proportion of patients achieve durable remission or a status of ... Read more

May 22, 2020May 20, 2020

Taking Advantage of Living in a Time Like No Other

Columns, The Girl Who Cried Wolf - A Column by Kristi Page

We are living in a unique time, and I am not referring only to the COVID-19 pandemic. How many times in your life have you wished you had more ... Read more

May 22, 2020May 22, 2020

Global Registry Studying COVID-19 Impact on Lupus, Other Rheumatic Diseases

News

Rheumatologists, researchers, and patients have joined forces on a global scale to better understand how COVID-19 affects people with rheumatic diseases, including those with systemic lupus erythematosus (SLE). The ... Read more

May 18, 2020May 14, 2020

I’m Learning New Skills as I Adapt to Change

Columns, Hurricane in Heels -- a Column by Kellie McRae

I was hospitalized the first month of this year, and I hope it’ll be the only time this happens in 2020. After the hospital, I was sent to a ... Read more

May 15, 2020May 15, 2020

Global Survey Finds Lupus Greatly Affects Physical Function and Life Quality

News

Lupus significantly affects mobility and the ability to conduct everyday activities, according to a global World Lupus Federation survey. Results of the questionnaire, which surveyed more than 4,000 people ... Read more

May 8, 2020May 8, 2020

Lupus Awareness Month Marked by Local, Online and Worldwide Activities

News

Despite the COVID-19 outbreak, ample online ways exist to mark Lupus Awareness Month, observed each May to call attention to lupus and raise funds for research and education. The ... Read more

April 29, 2020April 29, 2020

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Announcements

FFF Enterprises and BioNews announced today that both rare and orphan disease advocates are joining forces to provide patients with resources to help them connect as a community and ... Read more

April 27, 2020April 22, 2020

A Different Kind of Connection

Columns, Hurricane in Heels -- a Column by Kellie McRae

The lupus life can feel seriously lonely. Supporters surround me, but I know they can’t understand the things I endure. Lupus can create a whole lot of problems, mentally ... Read more

April 27, 2020April 28, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

News, syndicated

While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in ... Read more

April 24, 2020April 24, 2020

Study of Hydroxychloroquine vs. COVID-19 Planned for SLE Patients

News

Lupus Therapeutics, an affiliate of the Lupus Research Alliance (LRA), announced that it is working to design and run a clinical trial into whether hydroxychloroquine and other therapies for systemic lupus erythematosus (SLE) ... Read more

April 17, 2020April 14, 2020

Coping and Thriving During COVID-19 Isolation

Columns, The Girl Who Cried Wolf - A Column by Kristi Page

My last column focused on fear and other potential effects of being in isolation. As Australia continues to lock down, I have experienced different waves of emotions. The ... Read more

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