“Mind your business!” Perhaps we really aren’t too polite to tell you this. What really happens is that some of your comments catch us so completely off guard that the thought of telling you to back off only occurs to us after the situation is over. It seems everyone has…
Hurricane in Heels — Kellie McRae
Kellie is a lupus warrior who spends her time teaching many about the incurable disease she battles with a smile on her face. She travels the world, writes articles, has an active YouTube channel and creates coloring and activity books for both adults and children. She is known as Queen Bubbly Bee because no matter what is going on with her body, she always manages to find the silver lining.
As a kid, I was a big Carol Burnett fan. At the end of her variety show, she would sing a song called “I’m So Glad We Had This Time Together.” When it was over, she would tug on her ear. Today, I am tugging on my…
Recently, I moved to the other side of the world in search of better and affordable healthcare. Selling off all of my belongings in the U.S., I knew I was preparing for a new and great adventure. I’d traveled alone before, but the longest I was away from…
I will be honest, I am that person who rarely asks why bad things happen. Part of that is because it’s an exercise in futility. Who is going to answer you? Often, asking why is a reaction I see as wallowing, and…
It may sound crazy to expect to be able to predict something as unpredictable as pain, so when I say “unpredictable pain” I don’t mean you should be able to set your watch by it; I mean you should have an idea of what level it will…
When I started feeling bad and had no idea what was wrong with me, I thought I could go to the doctor and they would figure it out. There would be a shot or a pill and all would be fine. Life would return to normal. Fast-forward months later…
It seems to be a growing trend that doctors have a lot less time to spend with their patients. Many make you sit in a room all alone long after your vitals have been taken, with old magazines full of old news. While you’re sitting there, all of the…
It seems that people like to lay blame when they don’t have a full understanding of something. They tend to seek an explanation and when they can’t, then decide it must be someone’s fault. I have a feeling that those who deem themselves healthy think they mean well…
People tend to think of their animals as part of their family. They provide unconditional love and are there by your side through the good and the bad. That’s just the everyday value that a family pet provides. For those battling lupus, depression can be overwhelming, a feeling…
When people think of massage they often think of luxury — something to reward or pamper yourself with. Some may use it to alleviate stress, or perhaps a pulled muscle from a workout at the gym. Massage is not something many recognize as medicinal in nature, nor do they…
We love food. We salivate over it as we watch television commercials, spend hours enjoying it as we dine out with friends and family. And, if we fancy ourselves chefs, we spend time pouring over new recipes and finding new flavors. Still, we don’t always take into…
It’s interesting how most of the world can just plan a trip and go. When you are battling lupus, planning a trip takes a few extra measures. There needs to be plenty of thought, even for a short trip, when you are dealing with unpredictable symptoms. The…
Lupus primarily targets women, as does the media. We are often inundated with photographs of young, thin, flawlessly airbrushed women who are the picture of what perfection is supposed to be. It’s the stuff that dreams are made of — and enough to give us low self-esteem. Many of us…
Recent Posts
- To my ‘forever nurse,’ who finally gave me my diagnosis of lupus
- New analyses show Benlysta may aid flare control, kidney health
- Can art therapy help lupus patients improve cognitive function?
- With chronic illness, checking in means asking, ‘How ya really doin’?’
- FDA approves Gazyva as lupus nephritis treatment

