Diaries of a Lupus Chick — Marisa Zeppieri

Earlier today, the speaker of a faith-based class I participated in was discussing the ancient Greek term “parakletos,” which meant “advocate.” My ears perked up, as advocacy has become such an integral part of my life. The speaker explained how the term also meant “helper, counselor, intercessor, or someone who…

Whether you’re healthy or living with a chronic illness, navigating a new friendship is always a delicate dance. For those of us with lupus (or possibly multiple autoimmune diseases), it can be difficult to explain why we’re suddenly MIA for days, or even weeks, at a time. Welcome to…

Summer always puts me on high alert, because historically, it’s the time of year when I go into a major lupus flare. Like many lupus patients, sun and heat are my top triggers. In my area of the Carolinas, daily temperatures have felt like 100 degrees or…

Summer is officially here, and while I’m trying to shield myself from the sun, practically everyone I know is talking about their travel plans. If you follow my writing, you know I’m fascinated by vacations and that I’ve learned a lot over the past 20 years about traveling with a…

It’s that time of the year again, when we “lupies,” “spoonies,” or whatever you want to call us come out waving our purple banners. May is a special month for raising awareness about the life-changing illness that is lupus. For me, it’s a time to go big, as…

Ah, the changing seasons. Spring is finally here, and for many people, it’s an exciting time of rejuvenation, of shedding winter coats and embracing the sun’s warmth. But for those of us with chronic illnesses like lupus, each seasonal change can feel like stepping into a battlefield of unpredictable…

In the past three decades of dealing with unpredictable health issues, a pain point has reared its head over and over again for me. After countless conversations with other chronic illness warriors, I know it’s an ongoing struggle for many: employment and financially caring for ourselves. The constant struggle for…

If you, like me, live with chronic illness, have you ever felt like you think about your mortality more often than your healthy friends and family members do? Since before my lupus diagnosis, when I knew something was going haywire in my body, I’ve given a lot of thought…

At the start of each new year, I find myself awestruck by what it could bring to my life. While social media has a funny way of making us feel an overwhelming pressure for a “new year, new me,” I’d like to share with you a gentle reminder: Life with…

Chronic illness can bring a variety of challenges and limitations into our lives that are out of our control. For me, one of those was my inability to have children of my own. That was a hard pill to swallow, and it took time for me to work through it…

It’s the holiday season again, and while it’s my favorite time of year, it’s also the season that stresses me out the most. If you have lived with chronic illness for a while, as I have, you’re likely aware that it doesn’t mix well with stress. One…

If you have a chronic illness, I imagine you’ve experienced a moment of guilt at some point because you weren’t able to get out of bed due to a flare or other ongoing symptoms. I even bet you’ve felt that way more than once. I’m more accepting today…