Diaries of a Lupus Chick — Marisa Zeppieri

It’s no secret that living with lupus or other chronic illnesses often feels like a constant game of tug-of-war. One part of us aches to chase after our dreams, tackle projects, and seize life, while the other part…

Living with lupus or another chronic illness means making decisions most people never have to consider. One of the hardest choices for me was to prioritize rest, even when it meant saying no to family, friends, or opportunities.

Dating can be both a thrilling and nerve-wracking experience. Having a chronic condition certainly adds extra layers of complexity to the mix. I met my husband over 20 years ago, shortly after I was diagnosed with lupus. My…

Earlier today, the speaker of a faith-based class I participated in was discussing the ancient Greek term “parakletos,” which meant “advocate.” My ears perked up, as advocacy has become such an integral part of my life. The speaker explained…

Whether you’re healthy or living with a chronic illness, navigating a new friendship is always a delicate dance. For those of us with lupus (or possibly multiple autoimmune diseases), it can be difficult to explain why we’re suddenly…

Summer always puts me on high alert, because historically, it’s the time of year when I go into a major lupus flare. Like many lupus patients, sun and heat are my top triggers. In my area…

Summer is officially here, and while I’m trying to shield myself from the sun, practically everyone I know is talking about their travel plans. If you follow my writing, you know I’m fascinated by vacations and that I’ve learned…

It’s that time of the year again, when we “lupies,” “spoonies,” or whatever you want to call us come out waving our purple banners. May is a special month for raising awareness about the life-changing illness that is…

Ah, the changing seasons. Spring is finally here, and for many people, it’s an exciting time of rejuvenation, of shedding winter coats and embracing the sun’s warmth. But for those of us with chronic illnesses like lupus, each…

In the past three decades of dealing with unpredictable health issues, a pain point has reared its head over and over again for me. After countless conversations with other chronic illness warriors, I know it’s an ongoing struggle for…

If you, like me, live with chronic illness, have you ever felt like you think about your mortality more often than your healthy friends and family members do? Since before my lupus diagnosis, when I knew something was…