Diaries of a Lupus Chick - a column by Marisa Zeppieri

Ah, the changing seasons. Spring is finally here, and for many people, it’s an exciting time of rejuvenation, of shedding winter coats and embracing the sun’s warmth. But for those of us with chronic illnesses like lupus, each seasonal change can feel like stepping into a battlefield of unpredictable…

In the past three decades of dealing with unpredictable health issues, a pain point has reared its head over and over again for me. After countless conversations with other chronic illness warriors, I know it’s an ongoing struggle for many: employment and financially caring for ourselves. The constant struggle for…

If you, like me, live with chronic illness, have you ever felt like you think about your mortality more often than your healthy friends and family members do? Since before my lupus diagnosis, when I knew something was going haywire in my body, I’ve given a lot of thought…

At the start of each new year, I find myself awestruck by what it could bring to my life. While social media has a funny way of making us feel an overwhelming pressure for a “new year, new me,” I’d like to share with you a gentle reminder: Life with…

Chronic illness can bring a variety of challenges and limitations into our lives that are out of our control. For me, one of those was my inability to have children of my own. That was a hard pill to swallow, and it took time for me to work through it…

It’s the holiday season again, and while it’s my favorite time of year, it’s also the season that stresses me out the most. If you have lived with chronic illness for a while, as I have, you’re likely aware that it doesn’t mix well with stress. One…

If you have a chronic illness, I imagine you’ve experienced a moment of guilt at some point because you weren’t able to get out of bed due to a flare or other ongoing symptoms. I even bet you’ve felt that way more than once. I’m more accepting today…

Picture it: You’re deep in a lupus flare and have been in bed for weeks. In the silence, you think, “What is my purpose if I’m constantly sick?” or “How do I find meaning in my everyday life?” I can’t count how many times the frustration of being…

It can be a sticky topic — working (or not working) when living with a chronic illness. We travel so many journeys when we navigate this aspect of our lives. The fact is, each one of us will, at some point, experience our health intersecting with our ability (or inability)…

Having lived with lupus for decades and having spoken to countless chronic illness warriors over the years, I’ve realized that while our varied symptoms hit us differently, we all face one unifying dilemma: toeing the line of looking sick enough that medical personnel and others take us seriously while…