May is Lupus Awareness Month, and for several reasons, Fred Rogers and his eponymous children’s program “Mister Rogers’ Neighborhood” are on my mind. Fifty-six years ago this month, Mr. Rogers provided testimony to the U.S. Senate Subcommittee on Communications seeking to protect $20 million in federal funding for the…
Like any relationship, a patient-doctor one has rules about how to engage and communicate. They’re typically in writing, bearing the patient’s signature of agreement. I’ve seen the rules posted on walls as the U.S. Patient Bill of Rights and Responsibilities, but there are also unspoken rules around trust and admiration.
We’ve heard it said that “you can’t pour from an empty cup.” It’s a reminder to “fill” ourselves before we “pour out” for someone else. Pouring out is an action we do to improve someone else’s life. That improvement could be momentary or it could affect them for a lifetime.
Among the various time-management strategies is one where a person breaks up their day into 30-minute blocks and assigns tasks or activities for each block of the 24 hours. Some bullet journalists consider time blocking to be one of the most effective ways to stay productive. I tend to…
It’s so easy to jump on the woe-is-me, this-isn’t-fair, what-did-I-do-to-deserve-this bandwagon and shout, kick, and scream at the awful “bad luck” and horrible timing of chronic, incurable sickness. Feeling like a victim and falling into grief can seem inescapable when unprovoked pain, flares of skin rashes, hair…
As one year ends and another begins, many employers give job performance evaluations. That’s when, according to the Society for Human Resource Management, they or their supervisors commend workers for the impact they’ve made on the company and any recognizable or measurable outcomes they’ve helped produce. It’s also…
January 2025 was a month of civics lessons for anyone watching the news. We heard the term “executive order” more times than many of us care to count. While Americans are experiencing a crash course in U.S. government, that political term “executive order” can help pose an important question to…
Near the end of 2024, the support group Lupus in Color posted the following “lupus serenity prayer” on Instagram: “God, grant me the serenity to accept the changes and challenges of living with lupus, the courage to face each day with strength, and the wisdom to do what’s good…
It’s amazing the number of times we hear people speak negatively about themselves or their circumstances. Staying free from the doldrums is a challenge when living with chronic, rare conditions. Honestly, who can stay positive when your body is home to an immune system that attacks and attacks and attacks?…
One of the most horrendous aspects of living with systemic lupus erythematosus (SLE) is dealing with the additional diseases and chronic conditions that lupus causes. Lupus is insidious; it ushers in more symptoms and new diagnoses without warning and then releases a brutal, wolfish attack. It’s torturous being the…