I am just gonna call out the white elephant in the room because everyone has seen the news about drug therapies and possible side effects but no one really knows who or how this affects someone with any chronic illness let alone, for me, with lupus. Let’s be honest, we…
Aurinia Pharmaceuticals and Lonza have entered into a long-term manufacturing agreement over the active pharmaceutical ingredient (API) in voclosporin, Aurinia’s investigative drug for diseases that include lupus nephritis (LN). The agreement aims toward providing an eventual commercial supply of voclosporin, and includes its use in an upcoming and possibly pivotal clinical trial in LN…
Measuring the levels of a protein called epidermal growth factor — a promising kidney biomarker — in patients with lupus may help distinguish patients with kidney involvement from those without, according to researchers at the University of Michigan. Their findings were presented at the American Society of Nephrology’s Kidney…
A new research study exploring the effects of rheumatoid arthritis (RA) and systemic lupus erythematosus (SLE) on hearing, cognition, and language is calling for volunteers. The study, to be conducted at the Department of Communication Sciences and Disorders of East Stroudsburg University, aims to better understand both these…
You probably have heard the phrase “Sex, Drugs and Rock ‘n’ Roll.” I was used to hearing it as well as I grew up in the music industry in Los Angeles, with parents heavy into the ’80s rock scene. I grew up being told I was a rock star. No matter what…
I am on day 3 of recovery from a 5-day vacation. No, it was not a rave-filled party or an alcohol-induced retreat. In fact, as far as vacations go, it began quite mildly. I packed up the SUV with our two little dogs and my teenage boys, then we pulled…
The Lupus Agencies of New York State (LANYS) recently announced another victory after Gov. Andrew Cuomo signed into the law the Lupus Education and Outreach Bill. The new legislation will bring essential lupus education to the public and to health professionals. The bill was passed unanimously in June by the…
While my disease is doing better each day and I am feeling better with every treatment, there are some things that will never go away. I will never be “cured” in the traditional sense. I’ve tried so many things and so many doctors, and have been poked and…
The American Autoimmune Related Diseases Association (AARDA) recently announced its latest #AutoimmuneHeroes — its 22 Scientific Advisory Board (SAB) members who, over the past 25 years, have contributed their time and talents to advancing the association and helping it realize its goals of promoting research into lupus and other autoimmune…
The Lupus Research Alliance, newly formed from the merger of three different lupus groups, had its debut at the recent Inaugural Gala in New York, a fundraising event that collected over $2.5 million to support lupus research initiatives. The gala was co-hosted by Robert Wood Johnson IV, Lupus Research Alliance chairman and chief executive…