In this video from The Wolf and Me, a lupus patient explains what having the condition is really like and how it affects her everyday life.
She lists some of the thing lupus has robbed her of including her figure, her hair, her confidence, her mobility, the ability to exercise, to socialize with friends, and most telling, her personality.
However, as well as noting what she has lost in her life due to lupus, the vlogger also puts a positive spin on things and lists the things she has gained through lupus which includes inner strength, the love and support of family and true friends, empathy for others and the ability to appreciated the small things in life.
She tries to explain what it’s like living in pain for 24 hours a day, how debilitating fatigue can be and how she no longer looks or feels like the person she used to be.
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