Lupus Specialists Teach How to Manage Disease at LFAFL Seminar

Lupus Specialists Teach How to Manage Disease at LFAFL Seminar
0
(0)

A group of national bestselling authors gathered last Saturday to discuss the best ways to manage lupus at an event organized by the Lupus Foundation of America, Florida Chapter (LFAFL), which took place at the Nova Southeastern University, Orlando, Florida. The series of programs intended to improve knowledge on this autoimmune and chronic condition while encouraging the community to take action against it.

The event was initiated with a Support Group Facilitator Training, particularly designed for people willing to initiate support or become a co-facilitator of an existing group. The support groups held by LFAFL are characterized by regular in-person or virtual meetings of lupus patients, families, friends or caregivers. The training is focused on group dynamics, the organization and maintenance of a successful support group as well as LFA policies and procedures.

Simultaneously, the chapter also organized a Lupus Advocate Bureau Training, with the main purpose of increasing lupus awareness through the share of personal stories and accurate information about both the disease and the foundation. In doing so, the organization believes it can contribute to earlier diagnosis, proper treatment, and improved prognosis for those affected by this disease.

In addition, LFAFL also organized a Lupus Q&A Seminar, during which authors of the bestselling resource for lupus patients, families, and medical professionals answered some questions. The lupus specialists Robert Lahita and Robert Philips, debated a series of matters about the disease, including the latest drug treatments and the benefits of complementary and alternative treatments, such as hormone use.

LFAFL wants to create a unique learning opportunity in the Florida community while empowering members of the community to make an impact in the fight against lupus. There is currently no cure for this life-threatening disease that affects about one in each 185 people, damaging the skin, joints, and organs. The foundation is focused on improving the lives of lupus patients by supporting research, education and advocacy.

Inês holds a PhD in Biomedical Sciences from the University of Lisbon, Portugal, where she specialized in blood vessel biology, blood stem cells, and cancer. Before that, she studied Cell and Molecular Biology at Universidade Nova de Lisboa and worked as a research fellow at Faculdade de Ciências e Tecnologias and Instituto Gulbenkian de Ciência. Inês currently works as a Managing Science Editor, striving to deliver the latest scientific advances to patient communities in a clear and accurate manner.
×
Inês holds a PhD in Biomedical Sciences from the University of Lisbon, Portugal, where she specialized in blood vessel biology, blood stem cells, and cancer. Before that, she studied Cell and Molecular Biology at Universidade Nova de Lisboa and worked as a research fellow at Faculdade de Ciências e Tecnologias and Instituto Gulbenkian de Ciência. Inês currently works as a Managing Science Editor, striving to deliver the latest scientific advances to patient communities in a clear and accurate manner.
Latest Posts
  • Benlysta
  • COVID-19 Global Rheumatology Alliance
  • RC18 on fast track
  • financing round

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?