Tear Up the Contract and Communicate with Your Loved Ones

A lupus diagnosis affects more than just the patient. Spouses, children, close friends, and even co-workers are changed when a life-altering diagnosis is delivered. While the person with the disease has physical issues, their diagnosis has consequences for those around them. For example, a parent with small children won’t be…

Lupus Is Not an Award, but I’ll Accept It

Three years ago, I embarked on a journey of knowledge and hard work that has taken me around the world. It changed my life, and I’d like to thank the academy and accept this award … wait, wait, wait! Lupus is not an award. It’s not the result of hard…

My Family and the Stages of Grief

When you go through a major loss of someone close to you, well-documented stages of grief occur. These stages happen with death, divorce, and a major illness. I never realized that a diagnosis could cause grief. For me, it was not only a new revelation, but…