No Tea, No Powder, No Water, No Cure

No Tea, No Powder, No Water, No Cure

Hear ye! Hear ye! A cure for lupus has been found, except no one bothered to tell the medical community. I will be honest: I am not the biggest fan of the bedside manner of many of our healthcare professionals. The U.S. healthcare system needs an overhaul. But that said, I have some faith in research into the causes and cures of many of the diseases that affect us.

I know from having lupus that the symptoms are all over the place. One day there is pain, the next day energy is lacking. The day after that, you feel like you can take on the world. It is hard to diagnose, and there are many triggers. What affects me won’t affect the next patient. Some go into remission, while others never do. Some have major organ involvement, while others’ skin is affected. You just never know.

It seems to me that every time I turn around, someone without lupus has found a cure. I have been sent every article under the sun about how thyme, turmeric, cinnamon or any other spice can be brewed and added to a tea that will cure lupus. Someone selling the latest nutritional powder has sent me videos of someone else on a sales stage speaking about how this miracle powder has cured them. Or, how if I buy this expensive water machine, I can naturally drink my lupus away.

It is annoying and tiring to have to continue telling people the truth about battling lupus. If tea would fix it, I would be singing it from the rooftops. Living in an Asian country, I drink PLENTY of tea. Yet, I still have lupus. Lupus has no cure. It can go into remission, but the disease never leaves the body.

Some people who send me articles are well-meaning. People who send me products to buy (“and by the way, if you use my link…“) annoy the crap out of me. I often ask them if they have lupus. I get things in my inbox from people I’ve never heard of, who happen to have heard about me and my battle with “so-and-so.” Naturally, they cared enough to want to help save my life – along with their bottom line. To me, these people are the worst. They are modern-day snake oil salespeople and they are scary.

I’ve visited some of these sales pages. I’ve seen people say that they stopped taking their meds hoping a particular method would work. While I may not like that our healthcare professionals are often cold and have terrible bedside manners, I also do not believe the research that people claim regarding teas, powders and alkaline water. These things may help with your energy, nutrition and hydration, but they are not a cure. If you read these types of articles or watch the videos, please take them for what they are. They are meant to tap into your emotions and make you buy. But they provide no real solutions.

Before walking away from your medications, speak with your healthcare professional. I once left my meds cold turkey (I will NEVER do that again), but it was not because of a false promise of a cure. It was because I always have tried to stay away from prescription meds, and I was tired of the daily regimen of pill-popping. But I learned the hard way that it was a foolish idea. I don’t advise it.

For those who are not battling lupus, please stop with the sales tactics. You are harming naive people and not fooling those of us who see you for what you are – snake oil shysters looking to make a quick dollar from the suffering of others.

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Note: Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Lupus News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to lupus.

8 comments

    • Kellie McRae says:

      Hi Liliana, I’m glad you decided to read and comment. I do my best to offer a smile where I can so I’m sorry you cried but happy you laughed. I hope you will stop in and read more of what I share. It’s not always funny but I try to be upbeat in spite of the illness.

  1. Eddie Phillips says:

    HI Kellie,

    Another thought provoking column. Like you, my wife Julie decided to see if she needed all her meds and she won’t do it again. I have no issue with people seeking alternative therapies but they should definitely go to their health “PROFESSIONAL”, the clue is in the name folks.

    • Kellie McRae says:

      Our inability to seek out the professional first was because we knew better lol It’s like that old saying, its better to ask forgiveness than permission but we know and pray that remission has arrived so we foolishly stopped to check. I know for me, I just felt that even on the meds, I was in pain so asked myself then what is the point of the meds….well, I soon found out and I am sure Julie did too. So we learned a lesson that I have a feeling neither of us will repeat. Hope is always there so while I do drink the teas, I don’t do so thinking they will do anything other than help with inflammation or taste good. Thanks for the smile today Eddie and the reality check as well. We just want to be better and when do we want it? We want it now! 🙂

  2. Nara says:

    I do not have lupus but my mom does and we battle often with folks who claim to have the magic ‘cure.’ It surprisingly comes from people we know who are very wealthy (think 0.1% of the 1%) and ascribe to naturopathic medicine. And why not, when you have folks like Gwyneth Paltrow peddling claims like “A (Simple) Cure for Autoimmune Disease” via her company, GOOP. It is frustrating as my mom, for example, had to get cytoxan infusion and people shook their head and told us it was ‘diet, diet, diet’ as if though my mom doesn’t already eat organic whole foods, etc. She is also constantly told her meds will kill her in the long run. It is depressing and I can’t believe the hate towards evidence based studies. Good luck in your journey through this vicious disease!

    • Kellie McRae says:

      Hi Nara, I always find it funny when the healthy people have the solution. I recently shared a post on my facebook page where I told them I don’t want you to lead me into your version of a cure because you are not living my version of health. It is impossible for someone to lead me who isn’t experiencing this because they are leading me through the darkness on something I am looking at with the light turned on. I know some of these people mean well, some of them are just busy bodies and some of them are shysters but either way, they leave those of us who are battling feeling as if we are not doing enough and I just don’t know anyone who isn’t fighting as hard as they can to live a life without the pain of this disease. I am sending positive thoughts to you and your mom. Wishing her high energy and low pain. Thank you for sharing.

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