What People Say When You Tell Them You Have Lupus


We are all different. That said, every lupus patient is different mainly because the disease is so complex that it attacks patients in very individual ways.

This is how lupus attacks your immune system.

But most people don’t get that. What tends to come after someone acknowledges that you have lupus, is a comparison to someone they know who “just like you” also suffers with the chronic autoimmune disease.  “I have a friend who has a friend who has a cousin . . .  with lupus,” is one of the most common sentence starters.

In this video shared by Tyanna Semone, listen in on some examples of how people respond to her when they learn that she lives with lupus. Watch the video to find out what annoys Tyanna the most.

Wondering about what you shouldn’t say to people living with a chronic illness? Here are some examples you should know about.

Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Marta graduated from Universidade Fernando Pessoa in Porto with a degree in Communication Sciences and a Masters degree in New Communication Technologies. She has experience in social media, worked with several media channels, and has also worked as a freelance photographer and a graphic artist for almost 10 years.

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