If you want me to roll my eyes up in my head, tell me that faith will heal me. In your presence, I try to keep that visceral feeling to myself. But I have learned that my face often displays what I’m thinking against my will, so I tend to…
When I was selling homes, many first-time homebuyers wanted the world, but their budgets didn’t allow for it. I often told them that buying your first home is a series of compromises. No matter how you spin it, compromise means settling for less, giving in to things you really don’t…
A while back, I shared a mantra I learned in the military years ago that’s been echoed by many. I had realized that the phrase I’d been indoctrinated to believe — “pain is weakness leaving the body” — is, for lack of a better word, hooey! Another nonsense phrase…
Last January, my visit to the U.S. turned into one of my longest hospital stays since my lupus diagnosis. I associate a lot of fear with that stay. Once it was under my belt, many changes lay ahead. For the first time in over a year, I was optimistic.
I research every medication I am prescribed. I have doctors explain my test results as if I am 6 years old. I ask questions and when doctors don’t answer in a way I fully understand, I rephrase and research. I weigh the benefits and risks before deciding to take…
There are days when my life feels like a Milli Vanilli song; it’s being faked, but it’s known for the part that is fake! Unfortunately, lupus is very real. There has been a lot of rain lately, and as I move through my home I realize I am hurting…
I was awake for half the night. This is not unusual, but often I am coming up with topics to write about in this column or speak about on my YouTube channel. Instead, I was traveling down memory lane to things I have tried to avoid and misconceptions I…
I am slight in build. I am a woman who is bald. I am battling lupus. I am not fragile. If you were to stop and look at me, I might look as if I could break. At the start of 2020, I weighed 99 pounds. I’m happy to report…
I often remind myself that worrying isn’t helpful, especially because stress is a lupus trigger. In my past life as a well person, I always thought I handled stress masterfully. But after being diagnosed with lupus, I notice that my biggest flares happen when I experience high stress levels.
I was hospitalized the first month of this year, and I hope it’ll be the only time this happens in 2020. After the hospital, I was sent to a rehabilitation center. It was the first time since my diagnosis that I did rehab at this level. When I was younger,…