TO: 5 year-old Kristiana. FROM: Your Future Lupus-Fighting Self

TO: 5 year-old Kristiana. FROM: Your Future Lupus-Fighting Self
TO: 5 year-old Kristiana. FROM: Your Future Lupus-Fighting Self

Girl_Who_Cried_Wolf

I don’t know how to tell you this, but turning 21 isn’t going to be quite what we expected. Your life is not going to be a fairytale. You’re going to face some really hard times from which no one can save you.

You’re going to learn that what everyone says is true — life can be really unfair. But even more than that you’re going to realize just how strong you are, and how nothing and no one can or will ever take that from you.

fighting
Me, age 5.

You’re a fighter. Ever since the day you were born six weeks premature, you always have been, don’t you ever lose this trait. There will come a time when this fighting spirit will be the most invaluable thing you have, and the only thing that stops your world from turning inside out.

Continue to work hard in school and throw yourself into anything and everything you’re passionate about. We accomplish so much and, despite the odds, this will never change. No matter what stage of life we are in it always will a point of pride.

Don’t be afraid to fall and to fail. I promise you always will make it out the other side and you always will be better off because of it.

I know you’re a happy kid, but whenever you can, smile more, laugh more and take every moment not for what it could be, but for what it is. Celebrate the days you spend outside in the sun and appreciate that you live a life so free and void of limits.

No matter how you feel in any one moment, please know there are so many people who care and love you. One day, when you need it most, you’ll realize just how many there are.

You’ll understand that no matter how strong you are internally, it’s not a sign of weakness to lean on those around you from time to time. You’re not superhuman and no one will ask you to be – you can’t do this alone.

Look at your family and cherish them for everything they are to you and everything they will be. In 2016, those four will see you at your very worst, only to stand by your side and keep you together when you feel like you can’t do it yourself.

How I wish I could protect you and stop you from having to go through all of this.

Part of me feels as if I failed, like I could’ve done something, anything, to shield us from this outcome. But deep down I know there was nothing I could’ve done, and I’m not at fault.

I won’t lie to you; there will be times of darkness, times where the very sky feels like it’s falling and times where even tears can’t adequately convey your feelings.

But you will learn so much, and become so much more than you’ll ever know. And one day you will leave this world the exact same way you came in to it — fighting.

My sweet, it honestly breaks my heart and I don’t know how to tell you this, but you’ve got a wolf following you. While he may be only your shadow at present, don’t be fooled by his patience. He’s been chosen for you, and when the time comes he’ll make sure you’re never the same.

Note: Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Lupus News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to lupus.

 

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Kristiana “Kristi” Page is a surfer, barista and university student studying an Arts/Science Degree in Philosophy/Mathematical Modelling. Living on the picturesque Bellarine Peninsula on the South-East coast of Australia, she’s deeply passionate about salt water in all forms, amazing coffee – even though she’s not allowed to drink it – and above all else traveling the world: one country at a time! Diagnosed with Stage IV: Lupus Nephritis at 20, she’s determined to not be defined by her auto-immune condition. Using writing as a medium for self-expression she hopes to share her life and journey to both raise awareness and support others in similar situations! A big believer in the concept of dialectics, she loves to share her usually unorthodox – and sometimes controversial – views with the world; and in turn have others share theirs with her. Quirky by choice, inquisitive by nature and above all else: smiling, always!

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