A group of national bestselling authors gathered last Saturday to discuss the best ways to manage lupus at an event organized by the Lupus Foundation of America, Florida Chapter (LFAFL), which took place at the Nova Southeastern University, Orlando, Florida. The series of programs intended to improve knowledge on this autoimmune and chronic condition while encouraging the community to take action against it.
The event was initiated with a Support Group Facilitator Training, particularly designed for people willing to initiate support or become a co-facilitator of an existing group. The support groups held by LFAFL are characterized by regular in-person or virtual meetings of lupus patients, families, friends or caregivers. The training is focused on group dynamics, the organization and maintenance of a successful support group as well as LFA policies and procedures.
Simultaneously, the chapter also organized a Lupus Advocate Bureau Training, with the main purpose of increasing lupus awareness through the share of personal stories and accurate information about both the disease and the foundation. In doing so, the organization believes it can contribute to earlier diagnosis, proper treatment, and improved prognosis for those affected by this disease.
In addition, LFAFL also organized a Lupus Q&A Seminar, during which authors of the bestselling resource for lupus patients, families, and medical professionals answered some questions. The lupus specialists Robert Lahita and Robert Philips, debated a series of matters about the disease, including the latest drug treatments and the benefits of complementary and alternative treatments, such as hormone use.
LFAFL wants to create a unique learning opportunity in the Florida community while empowering members of the community to make an impact in the fight against lupus. There is currently no cure for this life-threatening disease that affects about one in each 185 people, damaging the skin, joints, and organs. The foundation is focused on improving the lives of lupus patients by supporting research, education and advocacy.